Showing posts with label colostomy. Show all posts
Showing posts with label colostomy. Show all posts

Friday, May 6, 2011

so...

A doctor walks into a room.  He talks to the patient about the newest surgery that's going to be needed, and asks about the patient's ileostomy and whether it's working well or not.  She assures him it is, but that healing after surgery is going to be a crap shoot.  He looks at her, deadpan, and says "literally."

ba dum ching!

get it?  ileostomy?  as a crap shoot?  oh, forget it. 

Honestly, I had an interesting meeting with Dr. Lee yesterday.  It was the first meeting I was going into where I already knew what was going to happen, what needed to be said, so nerves really weren't that high.  Truthfully, I'm kind of taking this surgery in stride.  That's not to say that it's not going to be a major major surgery, which it will, but how else can I view it but with humor?

The crap shoot?  Yeah, had Dr. Lee laughing with that one.  When we discussed what Dr. Polynice was going to do to my thighs, and that only one might be involved?  I again had Dr. Lee laughing and shaking his head when I said "I don't care if he does both.  At least then they'll be even!"  And later, when discussing which surgeon would be doing what, in my oh-so-delicate manner, I said "And you'll be reaming me out" much to Dr. Lee's amusement.  Sometimes I think he's not quite sure how to take me, but at least I can stay positive and joke about it, and I think that might be refreshing?  Beats me. 

So the surgery is going to be a bit bigger than expected, which is fine with me.  Dr. Lee is of the opinion (as am I) that as long as I'm under, it's better to open me up abdominally and make sure there is NOTHING overlooked.  It would suck to do this surgery without the abdominal component, and 3 months later develop another sinus from whatever would still be going on abdominally that we happened to overlook.  So Dr. Lee is going to cut the gut, make sure that's okay inside and if it's not, fix whatever is wrong.  Then he's going to open up and ream out my rectal sinus that's not healing, and he'll be closing me up abdominally while Dr. Polynice and his team will start with the gracilis cutting and stuffing into the butt.  The new expectation of time, with two surgical crews working on me simultaneously, is 6ish hours, give or take depending on what Dr. Lee finds abdominally. 

Surgery is scheduled for September 14th at this point, which means I get to do the dash AND have my birthday before going under the knife again.  That alone makes me happy. 

I started training last Sunday with my little walking group.  We're planning on continuing every Sunday until the dash to improve our strength and time.  I'll post separately regarding training. 

So that is all for now.  No more follow up appointments until my pre surgical workup, the week of.  I get to enjoy the summer, work hard at training, and get myself in great shape before surgery. 

Love to all and thanks for the thoughts and prayers.  Now for training and Chocolate milk, hummus and hula.  Whatever I can do to keep in shape and kick that dash's tush. 

kiss.hug.love

B

Saturday, August 7, 2010

Six weeks and counting...

So, here goes nothing.  I signed up for the warrior dash back when I found out about it, with all hopes that I would be running it no problems by the time it arrived on 9/18/10.  I figured, since I had 5 months left to train, that I would be in phenomenal shape by the time it arrived, and that I'd be able to conquer the dash no problem.  Well, here I am, 6 weeks away, and still haven't begun training.  Why, you might ask?  It goes something like this...

I was diagnosed with Crohn's Disease in 1991, and have been dealing with it on and off for the past however many years.  It's as much a part of me as I let it be, and I've tried not to let it limit my life.  In 2008 my intestine perforated, and I underwent emergency surgery to save my life, as I had severe peritonitus and gangrene internally since they estimate it perforated a full 3 days before I actually felt it.  As a result of that surgery, I ended up with a permanent colostomy, a great new outlook on life, and felt ready to take on the world when it was over. 

They left in my rectum, knowing that it was in bad shape and needed to come out eventually.  This past January 2010 my lovely remaining rectum ate through what was left of my large intestine and fistulaed.  Once again, I found myself undergoing an urgent surgery to take out the diseased rectum bit and switch my colostomy and permanent ileostomy.  I went through surgery, started recovery, and should have been healed by now.  Problem is, 6 months later, and I still have leaky heine.  So...

Now you can officially call me sweet cheeks.  We're filling the hole that won't heal with Medihoney, and hoping that will foster the healing process.  I don't know though.  I have one month left until the surgeon wants to go back in and see what's been going on.  Fingers crossed.

In the meantime, I signed up for something I heard about called Warrior Dash.  It's a 5k on crack cocaine.  Translation:  a 5k, on the side of a ski slope, with an army ranger style obstacle course peppering the run.  I figured it would be a good way to show the world that having an ostomy doesn't mean not living life.  It means I can do everything you can do, I just do it with a bag. 

So, with only 6 weeks to go and considering I haven't even started training yet, I'll keep everyone posted on how it goes.  My friend Mehul has developed a workout plan for me to try that is lower impact to not impede healing, and yet should still whip me in to shape.  Hopefully.

And on September 18, 2010, I will be covered in mud, soaking wet, leaping over fire just to prove that I CAN run the warrior dash (or walk it really fast).  I can't wait to earn my fuzzy viking helmet!

Much love. 

B

http://www.warriordash.com/
http://www.ccfa.org/
http://www.windhammountain.com/